Has anyone tried Tymlos? My doctor wants me to use it for 2 years. I have osteoporous and a bone disease called hypophosphatasia.
Just wondering what problems you may have had with it.
thank you
Hi everyone! I just jointed this group. Hoping to find out if anyone may have first hand experience with Zometa, "infusions" once every 6 months vs Prolia "shots" in the rump every 6 months. I had breast cancer in 1998 and again in 2020. Both times lymph nodes from each underarm were removed As I learned from my new oncology doctor once lymph nodes are removed you should never "poke". she explained that meant don't do infusions, draw blood, etc. from your arm She said that can cause edema (major… read more
Has anyone tried or is trying Evenity? I've been on Prolia for 2 1/2 years, and bones still got worse. Reading about this Evenity, I'm scared to death on taking it. Only 1 hospital out of all in my area will even give it, and to see in clinical trials women died of heart attacks and / or strokes, and the FDA at first would not even approve it..... I think I would fare better with more fractures. Sounds like it's scary stuff
I'm 75 years old. My weight is 109. My untreated osteoporosis is monumental. Any suggestions or is 2 late?. Thank you ❤️ so much for any response
Dear Angie25, I am taking natural things like calcium and magnesium and kefir and yogurt and many other supplements that do help.
Has anyone here had a Medtronic device for pain? I am on a trial right now and it does seem to help somewhat, I have severe osteoporosis in my back and hips, I have had 12+ kyphoplasty in my back so far? I am still on the fence about having it done permanently.
65 yr old female dx with severe Osteoporosis presently with multiple bone fractures unable to heal and not a surgical candidate due to osteoporosis looking for Drs in Chicago area that have a good knowledge base working with severe OP clients, already have tried " normal" treatments was told possibly look into studies??????? Anyone else in this situation? Thank you, Diane
There's a bone clinic at northwestern hospital.