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Top 10 Search Results for "Clinical trials"

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Where Are Clinical Trials

Where Are Clinical Trials

A MyOsteoTeam Member said:

Hello @A MyOsteoTeam Member - I encourage you to reach out to your healthcare professional for assistance.

posted almost 3 years ago

Tymlos

Tymlos

Has anyone tried Tymlos? My doctor wants me to use it for 2 years. I have osteoporous and a bone disease called hypophosphatasia.
Just wondering what problems you may have had with it.
thank you

A MyOsteoTeam Member said:

I was on for two years with no benefit but no side effects as well. I ended up with four months of unused Tymlos when I was all through. Tried to give it away and was told that was illegal.

posted about 2 months ago

Clinical Trials

Clinical Trials

Hi everyone! I just jointed this group. Hoping to find out if anyone may have first hand experience with Zometa, "infusions" once every 6 months vs Prolia "shots" in the rump every 6 months. I had breast cancer in 1998 and again in 2020. Both times lymph nodes from each underarm were removed As I learned from my new oncology doctor once lymph nodes are removed you should never "poke". she explained that meant don't do infusions, draw blood, etc. from your arm She said that can cause edema (major… read more

A MyOsteoTeam Member said:

How often do you have bone density screenings? I have been on Prolia and my Osteoporosis has gone to Osteopenia….I have bone density tests every 2 years

posted 4 months ago

Evenity

Evenity

Has anyone tried or is trying Evenity? I've been on Prolia for 2 1/2 years, and bones still got worse. Reading about this Evenity, I'm scared to death on taking it. Only 1 hospital out of all in my area will even give it, and to see in clinical trials women died of heart attacks and / or strokes, and the FDA at first would not even approve it..... I think I would fare better with more fractures. Sounds like it's scary stuff

A MyOsteoTeam Member said:

Aclasta/Reclast work for me in combination with exercise 😊

posted 9 months ago

Minus 4.6 Osteoporosis. Can Anything Hlp Me ?

Minus 4.6 Osteoporosis. Can Anything Hlp Me ?

I'm 75 years old. My weight is 109. My untreated osteoporosis is monumental. Any suggestions or is 2 late?. Thank you ❤️ so much for any response

A MyOsteoTeam Member said:

Dear Angie25, I am taking natural things like calcium and magnesium and kefir and yogurt and many other supplements that do help.

posted 6 months ago

Has Anyone Had A Trabecular Bone Score ? I Know We All Have The DEXA ( Bone Density).

Has Anyone Had A Trabecular Bone Score ? I Know We All Have The DEXA ( Bone Density).

A MyOsteoTeam Member said:

I spoke with my doctor and he said it only does the spine, but that because I also have degenerated osteoarthritis, I would not be a candidate for this test.

posted about 2 years ago

Prolia

Prolia

Why would you get bladder infections from prolia

A MyOsteoTeam Member said:

I was going to try but afraid of side effects who know why you get them! But clearly I’m not relishing the idea of worrying. I’m wonder about HRT patch? My daughter says that also help bones to… read more

edited, originally posted about 1 year ago

Medtronic Device

Medtronic Device

Has anyone here had a Medtronic device for pain? I am on a trial right now and it does seem to help somewhat, I have severe osteoporosis in my back and hips, I have had 12+ kyphoplasty in my back so far? I am still on the fence about having it done permanently.

A MyOsteoTeam Member said:

Great points to consider. I will have blood work first before going forward for scan and then Reclast if needed. I’m in Central
Florida! Thanks for your comment! Be safe

posted 5 months ago

Does Anyone Know Drs In Chicago Area That Work With Sever Op?

Does Anyone Know Drs In Chicago Area That Work With Sever Op?

65 yr old female dx with severe Osteoporosis presently with multiple bone fractures unable to heal and not a surgical candidate due to osteoporosis looking for Drs in Chicago area that have a good knowledge base working with severe OP clients, already have tried " normal" treatments was told possibly look into studies??????? Anyone else in this situation? Thank you, Diane

A MyOsteoTeam Member said:

There's a bone clinic at northwestern hospital.

posted about 1 month ago

Reclast

Reclast

I need input on experience with reclast infusion. My rheumatologist wants me to start it. I heard it causes hair loss amongst a myriad of other bad side effects. She is kind of steam rolling me when I voice my objections. I was just diagnosed with osteoporosis. I'll be 78 in November.

A MyOsteoTeam Member said:

I had my first infusion of Reclast on Oct. 29, 2021. 28 hours later I started having trouble seeing clearly. 2 days later I had double vision. I saw 3 eye specialists and 2 endocrinologists, they all… read more

posted about 2 months ago