Lizzy Do you walk with a walker or a cane? Can you drive? My heart goes out to you. It’s not easy from day to day activity but I am trying to keep a positive attitude. It’s nice to hear the experience of others with this disease.

Love your positivity! I use a walker and a cane. Hope to just go to a cane. We are moving to a one floor home because I cannot do the stairs. It’s hard to help clean out when I can only stand for so long. I have not tried to travel very far or taken an airplane anywhere yet. Hopefully soon. Take care!

Lorna I don’t use a walker occasionally I use a stick but I am very stubborn and keep going til I can do no more and have to rest. Amazingly I can keep moving but when it comes to standing on the spot (queuing ect) I soon have to sit down. Like you I think a positive attitude is essential and I will never give up trying to improve. Do you have walking aids ? I certainly wish I had taken a stick with me to the airport on our recent holiday !! Won’t be going again in a hurry.

Hi Lorna that all sounds so painful mine was all in my back with horrendous back spasms at the time. Curvature gets worse when I’m tired. Lorna 2 Alendronic acid is the weekly tablet they give us in England to balance up our bone loss that deteriorates faster than we can make new bone. That’s how it was explained to me. I wasn’t given an option of treatment with a physio but that could have been because we were in lockdown during the epidemic and most things shut down . Not a good time to be ill. My balance is pretty good now just can’t stand for too long before needing to rest.

Hi Lorna, I have a new chiropractor. She does adjustments. I haven't had fractures in the spine. Mine were simple fractures.
Ankle, wrist, nose & finger.
I am also going to a physiotherapist for balance issues. I am supposed to swim for exercise.
Regards Josie