My Endocrinologist wants me to take Forteo for 2 years by injection everyday as a bone builder. I am eligible through the Government as I had A femoral fracture due to the medication I was taking. My Doctor has to make application on my behalf to put me on the program. Side effects dizziness, leg cramps, soreness due to the injections. I would like your input on this program. Thank you.
@A MyOsteoTeam Member I'm not a doctor, just a fellow person with osteoporosis, and I've asked my doctors a ton of questions and read everything I can find, so far! Here's what I know about Forteo: It's normally prescribed for someone who has had a fracture (or fractures) and is at great risk of new fractures. Forteo is one of the medications which actually builds new bone, after 2 years. You have to give yourself daily injections for 2 years, at which time you must go off it permanently and switch to a medication which will hopefully prevent loss of the new bone you develop on Forteo. You stay on that new medication indefinitely, and never return to Forteo, which is only designed for a maximum of 2 years. It sounds like you've been on one of the bisphosphonates, such as Boniva, Fosomax, etc, since you had a femoral fracture. Unfortunately, that's one the common side effects of those drugs. One of the most popular meds now is what I take, Prolia. I had my first injection (given twice per year) in September, and no side effects so far; they're unlikely. Prolia reduces the risk of fractures by slowing and hopefully stopping further bone loss. Sometimes it can build new bone to some extent, but there's no guarantee of that. It's to stop the loss. Because its usually also prescribed, like Forteo, for women who are at greater risk of fracture, I think you may qualify for the insurance coverage. It should be less expensive. I qualified because my mother had osteoporosis and broke her hip, with major complications; I'm postmenopausal; and I've had multiple falls. There is still risk of fractures, so I have to be careful and avoid falling, but it reduces the risk of fractures by stopping further bone loss. Listen to your doctor!! He's got your best interest at heart and will prescribe what's best for YOU! Prolia might be a good choice for you to take after Forteo. I'm supposed to take it forever. It's safe to do that (if no side effects), and stopping it can quickly lead to fractures. I hope I haven't overwhelmed you!!!! Listen to your doctor. He/she doesn't want you to fracture again and wants to help you build new bone. Hope all goes well! Take care. Sorry I wrote BOOK!
I took Forteo. I experienced many outbreaks of cold sores inside and outside of my mouth. My Kidney function test came back high several times. My endocrinologist said it was possible that I was dehydrated because of the sores in my mouth.
However, when I saw my oncologist he said my Kidney function was good in June but by November I had stage 3 Kidney disease. The only thing that I was doing differently was the fact I started FORTEO IN AUGUST of that year.
Although the doctors claim my Kidney disease came from Ibuprofen I totally disagree.
Once I stopped the Forteo my Kidney function has stayed the same. I still have stage 3 Kidney disease but it hasn't gotten worse.
Just wanted to share this information and my experience with Forteo. I was you the very BEST. Maybe it will help you
but be aware of the side effects especially the ones that are not in the literature.
Isn't is amazing how these doctors "don't" tell us the important information we should know about taking the drug....... and after we stop the drug...... and all the important information they should be telling us "BEFORE" we take the drug????????
This is why we have to do research on our own. There are many "good" doctors, and there are very many "not-so-good" doctors who don't care enough to inform us.
Had devastating side effects from Forteo..poor quality of life due to constant pain. Benn off for a year, geel much better but now bone density is below from when I started. Trying Proila now, no side efdexts so far.
I've been on forteo since 10/02/2019. I've had a few side effects, mild diarrhea and some nausea in the beginning tho pretty much gone now. I am having some intense muscle and or bone pain in my arms and hands now but I don't know if it's from the forteo. I've tried actonel, Fosamax and Boniva with no good results. My osteoporosis number is 3.9 and I'm 61. Have broken my foot completely off, broken back and many broken ribs, so I had to try something! I'm going to stick with it for the entire 2 years and hope for the best. The shot is not bad. It's just unnerving to have to do such a drastic thing to try to get better. But I think it's worth it.
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