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Osteoporosis

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DES Baby - Diethylstilboestrol

DES Baby - Diethylstilboestrol

Do you know if there has been any research to determine if babies of mothers given Diethylstilboestrol (DES Baby) are more likely to develop Osteoporosis? I am the only child, out of 100+ relatives of two generations that has been diagnosed with osteoporosis. I am also the only DES baby in the family. Thanks for looking into this.
I realize that if mom had not been given the drug, I would not have been a miscarriage or another stillborn. Just curious that is all.

A MyOsteoTeam Member said:

I do suffer from upper back and neck pain. Rounded shoulders started years ago.

I would love to know if treatment can reverse any of these symptoms…

posted about 1 month ago

DES Baby - Diethylstilboestrol

DES Baby - Diethylstilboestrol

Do you know if there has been any research to determine if babies of mothers given Diethylstilboestrol (DES Baby) are more likely to develop Osteoporosis? I am the only child, out of 100+ relatives of two generations that has been diagnosed with osteoporosis. I am also the only DES baby in the family. Thanks for looking into this.
I realize that if mom had not been given the drug, I would not have been a miscarriage or another stillborn. Just curious that is all.

A MyOsteoTeam Member said:

@A MyOsteoTeam Member
Afternoon Cathy how was your day? Are you the DES Baby by any chance? You both have the same picture for your profile I see here on your post. Did you Google & find the Research… read more

posted about 2 months ago

I Am Diagnosed With Osteonecrosis My Bone Is Already Pretty Much Dead. Why Didn't Anyone Catch This Sooner? I Am So Lost And Frustrated.

I Am Diagnosed With Osteonecrosis My Bone Is Already Pretty Much Dead. Why Didn't Anyone Catch This Sooner? I Am So Lost And Frustrated.

Where can I find good information about my disease and best options to help me?

A MyOsteoTeam Member said:

Thanks, i wish I could do More for sure. But the little town here in Amery Wisconsin has doctor's that seem as if are not doctor's at all. When you go into a doctor office you would expect some kinds… read more

posted about 1 month ago

Reclast Infusion And Jaw Pain

Reclast Infusion And Jaw Pain

Since last year's Reclast infusion, I'm having jaw pain. Others?

A MyOsteoTeam Member said:

My Dr keeps PUSHING me to take Reclast - But it SCARES ME! 1st treatment can cause KIDNEY Failure! How did you decide to actually start taking this Rx?

posted 14 days ago

What Specific Exercise Have You Used That Helped Your Bone Density?

What Specific Exercise Have You Used That Helped Your Bone Density?

A MyOsteoTeam Member said:

@pamhudley
I’m sure if you were confined to a wheelchair you would think differently. It’s not as bad as people think in fact it has some benefits I’ve found lol. Can take kids to the Zoo or Royal… read more

posted about 1 month ago

Exercise

Exercise

Anyone get prior approval (from primary or specialist or Napropath/functional doc) before starting to exercise?
Thanks

A MyOsteoTeam Member said:

I belong to a diabetic community called DecNet. They have nurse practitioners, dietitians, social works and physiotherapists. They have a combination chair yoga and exercise program. You only do what… read more

posted about 2 months ago

Hair

Hair

Its probably been asked before, forgive me. I struggle using the site because if the brain injury and my cataracts are getting worse. I have always had very thick strong hair, and long strong nails. Recently however, my hair is coming out in handfuls, it becoming very thin. And my nails are constantly breaking. My question is, could this be related to the osteoporosis? Thank you x can this also affect your teeth, mine have bits breaking off whilst I'm eating. I've had them a long time… read more

A MyOsteoTeam Member said:

@A MyOsteoTeam Member
Evening Olive how has your past week been ? I’m off to sleep now. Take Care Olive Keep Safe

Shazza hugggggs coming your way

posted about 2 months ago

Not That Good L Am Struggling With Shoulder Pain Difficult Cleaning And Doing Thing Hear That You Don't Get Pain With Osteoporosis Xxx

Not That Good L Am Struggling With Shoulder Pain Difficult Cleaning And Doing Thing Hear That You Don't Get Pain With Osteoporosis Xxx

A MyOsteoTeam Member said:

Hi Sharon lovely to hear from you yes like you. I don't like the weather to hot we have had. Some good weather in england but gone a little cold today sorry your niece had COVID bad please she is… read more

posted about 1 month ago
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