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I Am Diagnosed With Osteonecrosis My Bone Is Already Pretty Much Dead. Why Didn't Anyone Catch This Sooner? I Am So Lost And Frustrated.

I Am Diagnosed With Osteonecrosis My Bone Is Already Pretty Much Dead. Why Didn't Anyone Catch This Sooner? I Am So Lost And Frustrated.

Where can I find good information about my disease and best options to help me?

A MyOsteoTeam Member said:

I am truly sorry. My heart just broke when I read your post. I don't understand how we live in the most medically advanced time and this would happen without warning, either. You must be one tough cookie that has lived 'with' a lot of pain. I am so, so sorry. BUT, as I read something when my sister was going through the diagnosis of breast cancer that struck me. They said, you can choose to live with a disease or die from it. She had a masectomy, radiation, chemotherapy 15 years ago. She Chose to Live.
I am not a doctir, but what I read online is that there is treatment for some...bone grafts, surgery, anti inflammatory meds...on the internet. I would think a orthopedic specialist expert of the area that us affected could be your first...or your regular doctor would knkiw who in your area specializes in the area.
Good wishes on your search and medical treatment. Internet can be useful, just look at the entity that published the information. You really can not believe everything you read on the internet, as my daughter often reminds her father of this fact.

posted about 1 month ago
A MyOsteoTeam Member said:

Thanks, i wish I could do More for sure. But the little town here in Amery Wisconsin has doctor's that seem as if are not doctor's at all. When you go into a doctor office you would expect some kinds of a answer but all I got was a very snotty way of how to pronounce osteonecrosis. And upon asking her questions she just looked at me. When you leave a doctor's office visit feeling dumber then when you came you have a problem. I am so scared depressed mentally, physically and emotionally worn-out. Thanks again for all the feedback.

posted about 1 month ago
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