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Clinical Trials
A MyOsteoTeam Member asked a question 💭

Hi everyone! I just jointed this group. Hoping to find out if anyone may have first hand experience with Zometa, "infusions" once every 6 months vs Prolia "shots" in the rump every 6 months. I had breast cancer in 1998 and again in 2020. Both times lymph nodes from each underarm were removed As I learned from my new oncology doctor once lymph nodes are removed you should never "poke". she explained that meant don't do infusions, draw blood, etc. from your arm She said that can cause edema (major… read more

posted February 1, 2022
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A MyOsteoTeam Member

I have been on Prolia for 3 or 4 years now and my bone density hasn't got any worse...I don't think I've had any side effects from the Prolia, I am 82 and have had Osteoporosis for about 5 years possibly caused by taking Femara after having breast cancer treatment (takes away all the estrogen as my cancer was dependent on Estrogen) I do have lots of aches and pains and spinal problems but I don't think they are anything to do with the Prolia as I've had degeneration of the spine for a long time now well before I started on Prolia.
I have also lost several centimetres in height in the last 10 years or so.

posted February 27, 2022
A MyOsteoTeam Member

i am considering prolia and then i see the side effects and the comparison between prolia and placebo and it is a meaningful issue. and i hear you on the lymph nodes and breast cancer..tho only on one side for me 19 years ago. after my hair loss experience with fosomax this past year after being on it for a few months, i am worried about any of these drugs. sometimes i wonder if they aren’t drugs in search of a problem..only to cause more problems we are supposed to just put up with. keep me posted and good luck!!! carol

posted February 15, 2022
A MyOsteoTeam Member

I can say that since I have been off of Fosomax infusions I have been feeling so very much better! All those aching joints have gone away. I just couldn't bring myself to start Prolia shots. Those side effects were almost identical to Fosomax, plus you can never stop taking it. I recently saw an advertisement on TV for yet another osteoporosis medication. Listed the exact same side effects as Fosomax. What the x#@#?
I feel so good right now being off that stuff! I have energy to do things! So amazing! Wish there was an alternative medicine that works against osteoarthritis. Anything being used in Europe that is not available here?

posted October 18, 2022
A MyOsteoTeam Member

Every 2 years here in Australia.

posted October 18, 2022
A MyOsteoTeam Member

How often do you have bone density screenings? I have been on Prolia and my Osteoporosis has gone to Osteopenia….I have bone density tests every 2 years

posted March 21, 2022

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