Connect with others who understand.

sign up log in
About MyOsteoTeam
Real members of MyOsteoTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Clinical Trials

Clinical Trials

Hi everyone! I just jointed this group. Hoping to find out if anyone may have first hand experience with Zometa, "infusions" once every 6 months vs Prolia "shots" in the rump every 6 months. I had breast cancer in 1998 and again in 2020. Both times lymph nodes from each underarm were removed As I learned from my new oncology doctor once lymph nodes are removed you should never "poke". she explained that meant don't do infusions, draw blood, etc. from your arm She said that can cause edema (major… read more

A MyOsteoTeam Member said:

I have been on Prolia for 3 or 4 years now and my bone density hasn't got any worse...I don't think I've had any side effects from the Prolia, I am 82 and have had Osteoporosis for about 5 years possibly caused by taking Femara after having breast cancer treatment (takes away all the estrogen as my cancer was dependent on Estrogen) I do have lots of aches and pains and spinal problems but I don't think they are anything to do with the Prolia as I've had degeneration of the spine for a long time now well before I started on Prolia.
I have also lost several centimetres in height in the last 10 years or so.

posted 4 months ago
A MyOsteoTeam Member said:

i am considering prolia and then i see the side effects and the comparison between prolia and placebo and it is a meaningful issue. and i hear you on the lymph nodes and breast cancer..tho only on one side for me 19 years ago. after my hair loss experience with fosomax this past year after being on it for a few months, i am worried about any of these drugs. sometimes i wonder if they aren’t drugs in search of a problem..only to cause more problems we are supposed to just put up with. keep me posted and good luck!!! carol

posted 5 months ago
A MyOsteoTeam Member said:

How often do you have bone density screenings? I have been on Prolia and my Osteoporosis has gone to Osteopenia….I have bone density tests every 2 years

posted 4 months ago
A MyOsteoTeam Member said:

Robyn, OMG i totally agree!!!! You hit the nail on the head..if these were annoying side effects that's one thing. If you HAD to have them or die..then you could decide if the serious side effects were worth it. But on the chance you might lose a few inches of height or break a hip maybe but get some pretty life altering impacts...I'm not sure. If they didnt have the dexascan machines and all these doctors trained to prescribe these drugs (and the companies making a bundle on the scared old ladies), i'd happily not know a thing about my bones. God knows what else is brewing in there that they dont have a scanner and drug lined up for. Yes, someday doctors will likely say to some upcoming old lady in 2040...you are lucky you didnt have to take the drugs we used to prescribe. hang in there!! Keep me posted on anything you hear or just to vent!! carol

posted 5 months ago
A MyOsteoTeam Member said:

My best to you Carol. These are not easy choices. Trying to live with serious side effects from a drug that "may" limit or "stop" osteoporosis progression vs. knowing what will happen if you do nothing about it. Unfortunately I have yet to hear from anyone or read of anyone that is a fan of any of the Osteoporosis drugs. If they were annoying side effects that would be one thing, but my experience is that they impact the quality of your life and you struggle each day to do normal everyday activities while taking them, pain everywhere. For heaven sakes, death can be one of the side effects. I'm beginning to think that these drugs are simply money makers for the pharmaceutical firms, making us unwitting guinea pigs for future drug development. They will be able to say at some point in the future that for the past 20 years there have been major issues and from that hopefully develop medications that work without serious side effects.

posted 5 months ago
Already a Member? Log in