I have osteoporosis,and I am happy to say I have not had any broken bones! My bone density test show my 60 year old bones are like that of an 80+ year old women.However I am in pain every day, my knees,hips
,back and hands hurt the most. But my doctors say there is no pain with osteoporosis until you have a fracture or break. And X-rays have not shown much arthritis. How "much" do I need to have for them to explain the pain I have? Have any of you had pain without fracture or arthritis?
I always thought that the pain in my joints, especially in my hands and knees was just part of aging. Now I don't know if the pain is from osteo or just age
I don’t have any pain from Osteoporosis but have a lot from Osteoarthritis. Also have Osteopenia that can be painful at times.
I have been on Prolia for two years; I have edema in my lower legs and feet. I feel it is from Prolia; I just went to a new doctor, and she said no one has ever reported that. As I was leaving, she told me to find that information. So, I am contacting anyone with information on that side effect.
thats my left knee sorry
I was diagnosed via a Dexascan by my GYN. She has since retired, and I would prefer someone who is trained in osteoporosis.
I think there was one great doctor for Osteoporosis, Dr. Darah Morgan. She retired. Everybody else goes by what the pharmaceutical salespeople are pushing. I do have a friend from India who is an MD… read more
I have been diagnosed for a little over 6 months. The pain is getting worse. I really do not want to take the meds the Dr. has prescribed. The side effects seem horrible. (The one the doctor recommended "Calcintonin" can cause cancer. it is a nasal spray. I'm looking for a more holistic approach. I came across an herbal supplement called AlgaeCal. I'm wondering if anyone has heard of/or tried this supplement. It is rather expensive but the testimonials are very positive. I'm wondering if it is… read more
I take naturello bone strength. Same ingredients as algaecal and so much cheaper
I was diagnosed today. I haven’t stopped crying. I have been a very healthy person. I’m scared after reading about the side effects of all those medications. I wonder if there are people who have decided not to take any medication and treat it just with a good diet and exercise. Is that a good idea?
Thanks,
Hi Vivian, I don’t take meds except the calcium tablets proscribed by Doctor, I take long walks most days eat plenty of fruit & vegetables & usually do Pilates 4 mornings a week, I’ve not long come… read more
I completed my 2 year course of Foreto beginning of May ’19, and had a DXA done in Oct ’19 which showed a disimprovement in scores. Rheumy now wants me to have an Aclasta infusion (Zoledronic Acid) to “keep gains”. I understand that Forteo is an anabolic - affecting osteoclasts and osteoblasts and when we stop taking it we need something to slow down the osteoclasts. My question is around this - how long are the osteoclasts supercharged after stoping Forteo ?
I've been on Prolia for about 5 years. I was told by a Naturopathic doctor that the longer a person is on Prolia, the more likely you will get a fracture in thigh bone that can be devastating. I'm not sure who to listen to. She also said you should take a Prolia holiday for an extended period of time, so the bones don't turn to be porcelain-like. She based this on the latest studies on Prolia. Any thoughts?
Thank you, CVD. That reply was helpful. Since I’m in the older patient group, I feel more inclined to try the natural approach for now. The PA bone specialist at the doc caring for my arm fx did… read more
During an endoscopy recently I was found to have a large hiatus hernia. That explains my acid reflux and heartburn! I’m now on 30 mg a day of Lanzaprozole which is helping a bit.