I’m in New Zealand - the only infusion option is Zoledronate (zoledronic acid). Any experiences good and bad helpful. No options makes this girl very nervous. Thanks x
I think we need some new meds that don’t make us in pain and make things worse. I wouldn’t mind being in pain , if I was going to better. But severe bone pain and my teeth fall out, and my bones won’t be any stronger. That’s like treading water and not going anywhere.
It is a continuous treatment I think hun x
Sending hugs , love & prayers to you & your Daughter Meredyth 🙏🙏
It sounds so awful. It is the only one that actually builds bone. But at least they keep it from getting worse.
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