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Has Forteo Helped Anyone With Building Bones And Relieving Back Pain From Fractures? If It Doesn’t Help After 1 Year, Why Continue?

A MyOsteoTeam Member asked a question 💭
Jacksonville, FL
January 27, 2020
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Answer Summary

Members shared mixed experiences with Forteo for osteoporosis and fracture pain, with some reporting no improvement in bone density even after... Read more

Members shared mixed experiences with Forteo for osteoporosis and fracture pain, with some reporting no improvement in bone density even after two years while others saw modest gains that didn't last long term. Several members expressed deep concern about transitioning to Prolia after Forteo, citing fears of serious side effects like femur fractures and jaw problems, with one member describing new hip-to-leg pain and fatigue within a month of starting it. A recurring theme was the frustration of living with chronic pain from multiple compression fractures, the challenge of finding doctors who truly listen and care, and the importance of self-advocacy through seeking second opinions, requesting parathyroid testing, and exploring movement-based therapies with expert physiotherapists.

A MyOsteoTeam Member

your doc will probably advise you to continue but the decision is yours. I took Forteo for the 2-year protocol and then was advised to go on another bone drug which I refused to do. That was 7 years ago and yes, my bone density has worsened, but I've had no fractures. I am 77 years old and take lots of bone supplements and exercise regularly. Ill decided with the next DEXA what to do but unless its reeaally bad I will continue drug-free.

January 29, 2020
A MyOsteoTeam Member

Have your Parathyroids been checked? You should ask for a calcium and PTH level be drawn. The parathyroids are 4 separate glands behind the thyroid. If they are producing too much PTH with an elevated calcium level you can develop osteoporosis. My dexascan went from osteopenia to osteoporosis in less than one year due hyperparathyroidism. For years, calcium levels were high which was considered good, but is actually bad.There is a group site for hyperparathyroidism which is a great resource to learn more about this disease. A lot of practitioners are not educated on this disease and early treatment is not ordered.
Good luck

February 26, 2020
A MyOsteoTeam Member

I have had 6 compression fractures. T12-L5 all Kyphoplasty. Still lots of pain.
Now I may have a fractured sacrum. My bone scans says Osteopenia.
I started Prolia but it increased my back pain. Looking for something that improves bones and pain. Prefer natural?

January 30, 2020
A MyOsteoTeam Member

Thank you for letting me know your experience with Forteo. It helps to learn what others have gone through. I think after 1 year, I will evaluate the situation. Not sure what I’ll do yet. All I know is that I can’t go through any more vertebra fractures. I deal with constant pain everyday.

January 29, 2020
A MyOsteoTeam Member

I started on Prolia about a month ago. I was concerned about the side effects. My Dr made me feel better about it after I told her my fears. A month in and I'm have pain in my left leg. I have had joint pain before. This is different.The pain is from my hip all the way down. The only reason I have of this is the Prolia. I'm also a lot more tired. I don't think I will continue.

January 27, 2020

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