I had been on Prolia about 6 years. It wasn't helping much but at least I wasn't getting worse.
Then because of a change in medical personnel at the center where I got it, there was a brief delay about 4 weeks or so) in getting my shot. There were no warnings about the danger of delay; I was just told my appointment would be later when the new doctor was available, and there were no warnings in Amgen's info to alert me. As a result I suffered three vertebral fractures and have… read more
I am thinking of all of you -- what a lot of pain and worry here!
RozJH, I was especially interested to hear about your dear mother, and her stopping a drug. It would be interesting to see the article she read. I have the sense that this has become a profitable (for some) but horrible (for others) business that may be hurting as much as helping many people!
I had some terrible falls before succumbing to Prolia (including being dragged by my own car in a freak accident) and never broke any bones. But after being on Prolia for about six years broke a whole bunch of bones all at once!! Go figure!
GO TO FACEBOOK GROUP PROLIA SIDE EFFECTS AND COMPLAINTS . In the FILES there is info from a lady called Diane Baker Mason that gives advice on how to stop prolia safely. There is SO much useful info on this site . Good luck .
That's exactly what I experienced Suzdenney! When I started on it in 2012 I "trusted my doctor" which was really stupid! I would give anything to turn back the clock to that time and say NO to Prolia! It's destroyed my active life.
My doctor has propose Prolia for me but after some research, I am going to decline the injections. At first I thought I would take a couple of injections to see if I experienced the side effects the drug manufacturer describes as common ( pain in back, arms and legs, higher cholesterol and bladder infections). However the dilemma is that when you discontinue Prolia, you experience rapid bone density loss, which even the drug manufacturer indicates results in spinal fractures. It seems to me that if you start Prolia, you must stay on it no matter how bad you feel. As I said I am declining and hoping my doctor does not "fire" me for non-compliance.