I had been on Prolia about 6 years. It wasn't helping much but at least I wasn't getting worse
Then because of a change in medical personnel at the center where I got it, there was a brief delay about 4 weeks or so) in getting my shot. There were no warnings about the danger of delay; I was just told my appointment would be later when the new doctor was available, and there were no warnings in Amgen's info to alert me. As a result I suffered three vertebral fractures and have been disabled… read more
GO TO FACEBOOK GROUP PROLIA SIDE EFFECTS AND COMPLAINTS . In the FILES there is info from a lady called Diane Baker Mason that gives advice on how to stop prolia safely. There is SO much useful info on this site . Good luck .
I am thinking of all of you -- what a lot of pain and worry here!
RozJH, I was especially interested to hear about your dear mother, and her stopping a drug. It would be interesting to see the article she read. I have the sense that this has become a profitable (for some) but horrible (for others) business that may be hurting as much as helping many people!
I had some terrible falls before succumbing to Prolia (including being dragged by my own car in a freak accident) and never broke any bones. But after being on Prolia for about six years broke a whole bunch of bones all at once!! Go figure!
I'm now about a year and a half out from my Prolia disaster. (www.JoansBackboneDisaster.com) I work with a physical therapist twice a week to restore some of the strength and balance I lost during the year when I could hardly move without pain. I still have a lot of pain if I sit or stand more than an hour or two. Airplane travel or even very long car trips are out of the question -- and I miss this. Compared with how I was last year around this time I'm a lot better. In terms of how I was just weeks earlier before my Prolia-associated backbone disaster, I'm indescribably worse. But (on my own dime) I've been able to cobble together a few things to make my life a little easier. Advice: if you are thinking about Prolia or on it, save as much money as you can because many of the things you will need just to live your life may NOT be covered by any kind of government or insurance funded reimbursement!
Perhaps this drug has helped some people. But if sharing my experience (and all I've learned since Prolia mismanagement ended my active life) can save anyone else from what I have gone through, I'll continue to do so.
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